Author Archives: Kirsten Ostherr

New Perspectives on Health Innovation

Guest post by Brian Quinn, Team Director of Pioneer Portfolio at RWJF

Brian Quinn / RWJF

Thank you to Kirsten Ostherr and Bryan Vartabedian for inviting me to be a part of Millennial Medicine last month. As the team director of the Robert Wood Johnson Foundation’s Pioneer Portfolio, my responsibility is to seek out new ideas that have the potential to transform health and health care. To do so, it’s become increasingly obvious to my team that we need to get out of our comfort zone of the usual conference circuit and look for opportunities to engage with folks we don’t know very well. Millennial Medicine was precisely that kind of opportunity. (If you have suggestions for other events I should attend, I’d love to hear them.)

The thing that really stood out for me about Millennial Medicine was the collaboration it fostered, whether it was across institutions or across disciplines.

One of our core beliefs on the Pioneer team is that there is a tremendous potential for health and health care to be transformed by thinking that transcends traditional siloes and comes to us from other industries and disciplines. More often than not that translates to speaking to or hearing from those who are working in technology. I get it; it makes sense. Because of the times we live in, technological advances are often vehicles for innovation. But technology itself doesn’t equate to innovation.

Millennial Medicine was the first time that I was engaging in a dialogue about health and health care innovation with people working in the humanities.

One of the presentations that resonated for me was from Alexa Miller from Arts Practica. Alexa is an arts education specialist working with physicians in Boston to improve the quality of health care by, in part, better enabling these physicians to engage with their patients through closer observation and deeper understanding of their health issues. And Jay Baruch at Brown University is also — through a humanities lens — educating doctors to see patients differently, to better hear what’s going on in their lives and, as a result, perhaps provide them with better clinical care. OpenNotes — an RWJF grant recipient — opens up a dialogue between physicians and their patients by improving communication from the physician to the patient. What Jay and Alexa talked about flips that and allows that patient perspective to flow back in the opposite direction.

Having attended Millennial Medicine, it’s clear to me that I’d love to hear from more people working in the humanities who could share their insight about issues that folks working in the health sector don’t think about very much.

If we’re truly going to disrupt health and health care, we need to consider these different interdisciplinary perspectives and bring others into the picture.

***Editor’s note: Many thanks to Brian from all of us at the Medical Futures Lab – we loved having you at Millennial Medicine and we look forward to continuing the disruptive conversation!

A Dialogue between a Scientist and a Humanist

DNA_sequencingOne of my favorite exchanges at Millennial Medicine was the dialogue between Eric Topol and Tom Cole about Topol’s “4 S’s”: scanning, sequencing, sensors, and social media. Topol argued that these four fields have become sufficiently mature that we can now digitize human beings, and he outlined the positive results of this revolution for patient care. (Our student Amol Utrankar provided a great summary of this and other presentations, for those who missed them. And we’ll be posting videos of all of the talks by the end of next week – watch this space for more details.) But Tom Cole, Director of the UT McGovern Center for Humanities and Ethics, thought Topol had missed a few S’s: Story, Spirituality, and Suffering – all crucial dimensions of the patient experience that came up at different times in the course of the symposium. This led to a wonderful dialogue in which Eric Topol expanded on his argument to say that, indeed, one of the effects of the digital revolution may be that it frees up doctors to focus on the more human aspects of providing health care: human to human contact.

The take-home lesson: digital medicine can foster improved doctor-patient communication, both through online tools and by making space for direct personal engagement. As usual, it’s not an either-or.

The even bigger take-home message: digital medical humanities can help create better health care for the e-patients of the 21st century. Scientists and humanists: let’s keep the conversation going!

The Global Reach of Millennial Medicine

GM twitter map MMWe’re thrilled to report that Millennial Medicine was a smashing success. In the words of presenter extraordinaire Alexa Miller, our speakers “hit it out of the park,” and here’s just one of the many incredible outcomes of the event: Greg Matthews’ map of “The geographic origin of the authors who used the #MMed13 hashtag during the Millenial Medicine Symposium on April 26, 2013.”

It is as exciting to see our reach as it is illuminating to see our gaps. We’re eager to capitalize on the energy of this meeting to reach out to the parts of the globe that didn’t see twitter traffic this time, and to think about how conversations about the future of #meded might look different beyond the red dots. As we will discuss in upcoming posts, a lot of our discussion circled around the relationship between physically present and online experience in medicine. This map provides just one of the many possible entries into this conversation.

We’re eager to hear more of your feedback, from those who attended and those who engaged via livestream. More opportunities to continue the conversation coming soon, and thanks again to everyone who attended – a sparkling audience is as important as a stellar speaker lineup. We were incredibly fortunate to have both.

Millennial Medicine livestream!

If you can’t join us in Houston, follow the Millennial Medicine symposium this Friday April 26 from 8:30-5:15pm CST on twitter at #MMed13 (and send questions for us to feed to the speakers), and watch the livestream at:

http://edtech.rice.edu/www/?option=com_iwebcast&task=webcast&action=details&event=2772


Let us know what you think!

EMRs and the Problems of Diagnoses, Part 2

Guest post by Olivia Banner.

"Schematic Flow Chart for DIAGNO II Computer Program," Robert Spitzer and Jean Endicott, _American Journal of Psychiatry_ 125, 7 (1969):15.

“Schematic Flow Chart for DIAGNO II Computer Program,” Robert Spitzer and Jean Endicott, American Journal of Psychiatry 125, 7 (1969): 15.

In a previous post, I wrote about Ted Gup’s critique of the current rush to organize human differences into diagnostic categories, which he published on the heels of the CDC’s recent report that 11% of U.S. children are currently diagnosed with ADHD (see “Diagnosis: Human”). It’s interesting to consider this critique in light of the DSM’s history, and in light of projects to automate diagnoses using computers, all of which produces some intriguing questions about the future of EMRs.

Some readers may already be familiar with the vagaries of how the DSM has treated “homosexuality” over the years: it wasn’t until 1986 that editors completely removed it from the DSM.

This is only one among many examples of how the DSM mirrors cultural attitudes toward the groups of “symptoms” it classifies as psychiatric disorders.

In the late 1960s, one of the DSM’s previous editors, Robert Spitzer, developed a computer program intended to automate diagnosis. Called DIAGNO, the program was envisioned for use during intake at psychiatric facilities. Spitzer’s basic premise was that, since clinicians employ a decision tree to arrive at a differential diagnosis, and software code also uses decision trees, a computer program could be equally if not more precise than humans at determining diagnoses. DIAGNO went through three versions as Spitzer fine-tuned it over the years, aiming for a program that could one day skip the clinical encounter altogether.

As far as I’ve been able to figure out, DIAGNO remained a dream that was never implemented; however, it’s interesting to note that Spitzer was building on other researchers’ programs to automate recommendations for which drugs to use to medicate specific disorders. One of these was used in the late sixties at the University of Texas Medical Branch in Galveston. (Please comment if you have any additional information on DIAGNO’s implementation!) The dream of automating diagnoses lives on, however, whether in technologies intended for use in the home such as SCANADU, which would diagnose medical conditions, or those for use in clinical settings. In the latter category we could include a fascinating project that attempts to integrate findings from cognitive science to help automate psychiatric diagnoses, so that diagnoses can be reached through a computer program analysis of a patient’s narrative (see Cohen et al., “Simulating Expert Comprehension”).

I wonder what Ted Gup would say about this latter effort. In this dream of a future where diagnoses are automated, his narrative about his suffering might, when analyzed by software, be diagnosed as a condition suitable for treatment. Do we want this future where computers can diagnose? What happens when EMRs are based on diagnostic categories that can’t reflect the particular exigencies of their historical moment that drive the diagnosis?

How does automating diagnoses occlude broader cultural debates about the diagnoses themselves? And how can we, as educators, best alert our students to these problems, even as we search for more efficient ways to implement new digital technologies into clinical practice?

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