Category Archives: e-patient

Sleep Profiling

http://www.bbc.co.uk/science/humanbody/sleep/profiler/

The National Institute of Health estimates 50 to 70 million American’s sleep patterns suffer from sleep disorders and/or intermittent sleep problems. That means that nearly 20% of Americans are having trouble sleeping! Whether from their environment, their psychological state, or their health issues, a significant portion of America is going to class or work foggy from fatigue.

At the above link, via the BBC, you can take a sleep profiling quiz (regardless of whether or not you believe you’re a part of that 20%) that will determine how well you’re sleeping and what adjustments you might want to make.

Personally, I was recommended to remove my computer and stereo from my bedroom in order to remove temptation from activities that will stimulate my brain too much right before bed.

This has been recommended to me before by friends, but seeing the data before my eyes of my sleep schedule compared to how often I doze during the day allows me to solidify in my brain what is wrong with my sleep schedule.

This sort of online survey can quickly and easily create an e-patient in terms of such sleep issues, and is something I would particularly recommend to busy students!

ePatient Sketch

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A lot of things go into being an ePatient, but through working on helping more patients transition into ePatients, I have come to realize it is not just the individual that creates the ePatient, but an ePatient team. It is the individual that must digest all the information as his own; however, the empowerment can just as much come from the support group of physicians and caretakers (family, friends, etc.) that give this individual the motivation to seek empowerment and to claim empowerment as his own.

Quantify Yourself

As Socrates once said, “to be is to do.”

As an aspiring physician, I’ll soon enter a clinical environment that’s more data-driven and technology-oriented than ever before. More patients are using mobile applications to track their health data. More providers are incorporating patient-generated big data into clinical decision-making. More devices are becoming integrated into the Internet of Things, a connected contextual framework with the power to drive personalized, predictive healthcare.

In class, we’ve discussed how e-patients can use self-tracking to build awareness and control over their health status. In our design setting, we’ve examined how intensive care physicians have to consolidate vast quantities of data into a cohesive patient narrative and a plan of care. But there’s discussing and observing, and then there’s doing. I decided to take it a step further. I wanted to situate myself in the patient’s, or provider’s perspective, using self-tracking to inform and inspire my own health behaviors.

Over the past 30 days, I’ve used Azumio’s Argus to construct a digital timeline of my lived experiences. Every morning, I log my sleep, heart rate, and blood pressure. As I walk across campus, I measure my steps and calorie consumption. When I sit down for a meal, I take a snapshot of my plate. With each meal, I record how many glasses of soda and/or water I’ve had. When I hit the Rec Center, I record my exercise by type and duration. If it’s a weeknight study session, I count how many cups of coffee or tea it takes to power through it. If it’s a weekend, as I hit the bars, I save how many bottles of beer or glasses of wine I’ve had. And at night, I check my pulse and blood pressure again right before my head hits the pillow.

Now, the critical question: what have I learned?

Commitment. Between Week 1 and Week 4, my “compliance” fell from 96% to 63%. It takes a committed, conscious effort to record every meal, every vital sign, every exercise, every minute of the day. I hold a new-found respect for the diabetic patient who has to monitor his blood sugar, manage his appointments, and mind his meals; it’s a process that’s both distracting and exhausting.

Awareness. As much as the constant inputs were a challenge, they empowered me to become cognizant of my daily behaviors. Did I really eat pizza and chips for lunch that often? I went that long without drinking water? Do I really spend so much of my day in a sedentary state? To record empowers us to know, and to know inspires us to act. I wonder if, as we move towards ‘ambient-tracking’ devices, we’ll lose this sense of awareness and agency.

Application. So often I found myself asking, what really matters? Argus would frequently warn me that I hadn’t drank water in three hours, or congratulate me for walking 10,000 steps that day. Did these things necessarily make me a healthier person? As we realize our ability to quantify everything, it’s important for us to isolate signals amidst noise. It’s necessary that we identify the parameters that matter for health versus those that don’t. It’s vital that we appropriately calibrate the thresholds of behavior that justify a congratulatory or cautionary alert. Data for data’s sake is useless; the next step is to make that data actionable.

If you haven’t quantified yourself yet, it’s a must. Data is a ubiquitous element of our modern lives. When we quantify ourselves, we can critically evaluate our daily experiences from a birds-eye vantage point. We can channel those insights into knowledge and action to enrich our lives. And, as future physicians, we can learn what it means to gather data, make sense of data, and use data to drive clinical decisions.

A Technocultural Medical Revolution

ePatients are often lauded for their effective use of technology.  They use technology as a means to take measurements, research information, and create communities.  While their use of technology is often the focus of attention, their culture is often neglected.  Ferguson and Frydman (2004) address both of these points in their seminal article about ePatients and argue, “We are witnessing the most important technocultural medical revolution of the past century.”

The culture of the ePatient movement definitely needs attention.  By changing the dynamics of the physician-patient relationship, ePatients are effectively changing the culture of how laypersons interact with physicians.  Carman (2013) proposes that there is a continuum of engagement for patients in direct care.  Currently, most patients fall under the category of consultation; that is, they receive information about a diagnosis.  ePatients argue that they should have greater engagement.

Patients may get more involved by sharing their preferences in a treatment plan, thereby taking into account their individual culture, background, and spirituality.  On the most engaged end of the spectrum, patients have partnership and shared leadership with the physician.  Carman (2013) imagines that with this level of engagement, “treatment decisions are made based on patients’ preferences, medical evidence, and clinical judgment.”

Clearly, this is a step away from current physician-patient interactions.  With higher levels of engagement, patients are expected to be health literate.  They are considered equals with the physicians and can elect their own treatment plans.

But is this change in culture possible?  People around the globe unanimously regard physicians to be the most respected professions, and there are multiple reasons for this.  Medical professionals have a direct impact on the lives of everyday people.  They are present when people feel the most vulnerable, and they serve as their confidants.  Physicians tend to have higher levels of education and higher income, and they have great responsibilities and expectations.

Photo Credit: illustrationsource.com

In cultures that have a predominant social hierarchy, the idea of being an ePatient seems almost frightening.  For many East Asian countries, some patients would not dare correct their physicians.  It would be disrespectful, impolite, and indicative of lesser social status.  It would disregard power dynamics, and the patients would be overstepping long entrenched boundaries.  It is, therefore, unsurprising that the ePatient movement has its roots in the Western world.

Additionally, in the ePatient-physician relationship, it is critical to distinguish the difference between health literacy and medical education.  While patients may understand the biological processes behind their illness, physicians have had at least seven more years of education in medicine whether in medical school or in residency.

Photo Credit: healthydebate.ca

In this technocultural medical revolution, there must be balance.  Mutual respect is key.  There must be an acknowledgement that the physician has greater expertise, but physicians cannot regard themselves as superior.  It is true that the physician cannot fully understand what the patient is experiencing, but the physician can at least practice empathy.

In any case, we must be aware of these cultural phenomena if the ePatient movement is to be globally ubiquitous.

Photo Credit: growingolder.org

Ping. Have It Your Way.

Ping.  That must be my daily reminder.  How am I feeling now in terms of arousal and valence?  Well, I just had my weekly meeting with my research advisor.  He was really getting into the nitty-gritty and suggested that I should have been farther along with my project.  I don’t even like this project.  I wish I could just get it over with… Anyway, probably low valence.  It was a pretty negative experience.  Also high arousal… He really stresses me out, and I could feel my blood pressure rising.

Photo Credit: mzstatic.com

One of the greatest benefits of mood tracking is increased self-awareness.  Mood tracking apps like Moodscope and Mobile Therapy remind users to take a step back and to reevaluate their life choices.  They can reflect on what is bringing them happiness and what is bringing them down.  By connecting their moods with other factors happening in their lives, users can develop a greater understanding of themselves with respect to their environment.

The beauty of mood trackers is that they also provide spatial and temporal information.  Users can link their moods to their immediate spatial surroundings and to the time of recording.  By randomly sending pings throughout the week, these apps can help users determine where and when they tend to feel upset or happy.

Additionally, mood trackers do not only take in information, they can also offer advice.  Mobile Therapy offers therapeutic exercises, including breathing visualization and muscle relaxation.  It also offers strategies to quit smoking, treat anxiety, and detect relapses in psychotic disorders.  Ideally, these mood tracking apps could personalize therapeutic exercises to a user’s specific input.  You could “have it your way” by inputting end goals, such as cultivating happiness or controlling the relaxation response.

Photo Credit: play.google.com

With most mood trackers, it is also possible to add information through texting—users can share paragraphs of information if they feel inclined to do so.  Therapists and physicians could use these self-reflections to see how their patients are doing over time.  Appointments with health professionals are short, and they are not necessarily indicative of how the patient normally acts.  Some patients may experience white coat syndrome, so there is an additional benefit of having records of patients outside of the doctor’s office.

In the future, perhaps these apps could notify the patient’s physician directly.  Jon Cousins describes the benefits of connecting his data to those close to him: “We leave traces of ourselves with our numbers, like insects putting down a trail of pheromones, and in times of crisis, these signals can lead us to others who share our concerns and care enough to help.”

If physicians have access to their patients’ personal information, they can individualize their treatments.  While there would be a lot of information to handle, this issue could be alleviated with efficient organization and clean programming.  It is possible to automatically assemble the relevant information in a visually aesthetic way, and these apps track not only the physical health of users, but also their mental and psychosocial health.

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